Net neutrality is a complicated issue, but is it too much to expect journalists to get it at least mostly right when they write about it? Apparently so. Case in point is Neil Irwin's New York Times article “A Super-Simple Way to Understand the Net Neutrality Debate.” Simple, and simply wrong.
E.U. Data Privacy Rules Threaten Medical Research
The Europe Union’s continuing efforts to regulate data in the name of privacy protection is raising growing concerns in the medical research community — and elsewhere — about the potentially costly unintended consequences of those rules.
Will Obama Be the Last Open Data President?
In the nearly six years President Obama has been in office, he has taken a series of steps to further the ideal of open government through data, and there is still much to be done. Unfortunately, with the presidential election season just around the corner, it remains to be seen if the progress made over the past few years will continue in future administrations, or if President Obama will be the last open data president.
Big Data is a Powerful Weapon in the Fight for Equality
Not only are fears that big data will lead to discrimination in the future likely overblown, but they have clouded the debate. Daniel Castro writes in The Hill that those working to fight discrimination should look to data as a way to further eliminate unjust biases in society, and create a more fair and transparent world.
Proposed EU Data Protection Regulations Could Impede Medical Research
The EU faces high stakes for improving medical research. But portions of the EU’s proposed General Data Protection Regulation (GDPR) would introduce inefficiencies into the process of conducting medical research in all of the EU’s member states and could have widespread consequences.The GDPR stipulates that organizations processing individuals’ personal data must obtain informed consent from those individuals every time they want to use data for a purpose other than that for which it was originally collected. The EU should revise the proposed regulations to provide a means for researchers to obtain consent that covers multiple uses of patient data, including uses after death.