Not only are fears that big data will lead to discrimination in the future likely overblown, but they have clouded the debate. Daniel Castro writes in The Hill that those working to fight discrimination should look to data as a way to further eliminate unjust biases in society, and create a more fair and transparent world.
Proposed EU Data Protection Regulations Could Impede Medical Research
The EU faces high stakes for improving medical research. But portions of the EU’s proposed General Data Protection Regulation (GDPR) would introduce inefficiencies into the process of conducting medical research in all of the EU’s member states and could have widespread consequences.The GDPR stipulates that organizations processing individuals’ personal data must obtain informed consent from those individuals every time they want to use data for a purpose other than that for which it was originally collected. The EU should revise the proposed regulations to provide a means for researchers to obtain consent that covers multiple uses of patient data, including uses after death.
ITIF Submits Comments to the National Science Foundation Regarding a National Privacy Research Strategy
To ensure the potential benefits of data-driven innovation are attained, the U.S. federal government should support research efforts to address the most pressing privacy and security research questions faced by industry and government. This filing describes five areas—healthcare, transportation, criminal justice, education, and social media—where additional research is needed on how to share data while best preserving privacy.